I was looking through some pictures last night and was admiring this sweet little girl. Seriously, could she be any cuter?! She makes me smile. So I thought I would tell the story of Kelly's g-tube, coming out.
A few weeks ago, on a Wednesday to be exact, I awoke a little before seven. Knowing that it was going to be a busy day and our household needed to get moving, I was on my way to the shower. However, on my way I stopped by Kelly's room to run her feeding pump off. I knew her feeding was about done and didn't want the pump to alarm while I was in the shower, there were still two family members sleeping. I turned the pump off and then went to clamp Kelly's extension, the piece that fits into her button. I felt the blanket that was on her and it was soaked. My first thought was, "Oh man her extension somehow came out, which means the formula is not being pumped into her stomach but rather making a mess everywhere and the poor girl is not being feed. As I began to feel around to try and find the extension, I felt Kelly's stomach, there was nothing there. Nothing, her stomach felt flat. What's the big deal you wonder? It was a HUGE deal! I should have been feeling her button but it wasn't there!
I quickly undid her pj's and I saw with my eyes, nothing. Kelly's g-button was GONE! I'm pretty sure I gasped out loud at what I saw. Normally not a big deal. We had a button malfunction at the beginning of the summer and we had to switch her button out. However this situation was much different. When I undid Kelly's pj's to see that her button was gone, the hole where the button is placed was, well... almost closed. There was more skin than hole, there was nothing there. I tried really hard not to freak out at this moment. We were told that when a button falls out that we have about an hour to get a new one back in. Otherwise her site will start to close. Well considering we don't know when the button came out we were well past the hour point!
How could this cute thing cause so much trouble?
I quickly ran to get to Bill. I was really trying to not just yell at this point. I told Bill that I needed him "to come here, NOW"! I have never seen him jump out of bed so fast! I must not have been doing a good job at staying calm, although I was really trying. We quickly chatted about how in the world the girlfriend could have pulled her button out- it was still completely in tact- on the end of the button is a small balloon that keeps it in place, that keeps it from falling out, the balloon did not break, she some how got it pulled it out of her button site- really quite crazy!
We quickly got on the phone to our doctors at Mayo, of course it was too early and none of them were there yet. But some other helpful people told us to try and get something, anything in that site. Bill tried the button, that was not going to work, he tried a small little tool that we use when we put in a new button in, he couldn't even get that in. So he was off to the ER, you see if we get nothing in that hole Kelly would have to have surgery again to place a new one in. We needed something in that hole until we could get to Rochester. The ER doctor was not having any luck but thankfully one of the doctors from Mayo called Bill just before he left the ER with Kelly. The doctor was able to talk with the ER doctor and helped him figure out something to get in the hole, he was finally successful!
So we all packed up and headed to Rochester. The doctor there was able to dilate the button site, using metal rods, and she got a new button in! All without surgery, hooray! The crazy thing was that we were suppose to be going to Mayo that day anyway, just not for a g-button issue! We were suppose to be going for a cardio check-up. So we got the button work done and were only about five minutes late for our cardiac appointment! For as crazy as the day started out and did not go as planned- Bill was not going to go with us, just the girls and I were going to go for a quick check-up- it ended up being a good day. We were reminded of what amazing people we have caring for our sweet little girl. We had an amazing conversation with the PA who worked on Kelly's button issue. We talked about adoption and she loved on all three of our girls. Our big girls then charmed all the nurses in the hallway, they charmed their way into about 25 stickers! And then we meet with our cardiologist and as always he was great to our family. An appointment that should have been about five minutes lasted about a half hour, including suckers for the whole family.
So sweet Kelly girl continues to keep us on our toes. We asked if we could just keep the button since the hole was almost closed. Not a change, they said. Kelly has to go at least three months with out using her g-tube, for anything. She has to be able to gain weight, take in enough food orally and take all medicine by mouth. So since that day we have stopped using that little button. Our goal is to get rid of it, the right way, for good! So far Kelly is being a champ and it is going great.
(Maybe the story was a little long but hope you at least enjoyed the pictures! I know I already said it but this girl is just too cute!)
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